PARENT TO PARENT

When a child is first diagnosed with AS, it is natural to be overwhelmed with the news. You are not only interested in acquiring specific information about AS, but also may need emotional support to help you through the difficult feelings that come after the diagnosis. This adjustment period may last a number of years. Various events and family situations throughout the life of your AS child can also create a need for emotional support.

 

Sometimes it is helpful to discuss your thoughts and feelings with others that have had the same experiences. We have a number of parents within our group, with AS children of varying ages and abilities, who are willing to be contacted by other AS families. If you would like a family in your region to contact you then please fill out the form below. Otherwise, please feel free to reach out to one of the families listed at the bottom of this page.

PNWASF Parent-to-Parent Contact Form

We are always updating our Parent to Parent directory. If you would like to be added please email your name, city in which you live, phone number, e-mail, name of your child/children with AS, their date of birth and classification, if known (for example: deletion positive, clinical, UPD, etc.) 

WASHINGTON

North

Jon and Jennifer Hegge
Everett

(425) 750-2985
Daughter: Alyssa
Born: November 1989
Clinically Diagnosed

Jeremiah and Sarah Webb
Mukilteo

(801) 885-1765
Son: Jackson
Born: June 2011

South

 

David and Erin Platts 
Auburn

(253) 737-5974
Daughter: Bridgitte

Born: December 1989
Deletion Positive

 

West

Gloria DeRosa and Chris Luna 
Port Orchard

(360) 876-8342
Daughter: Angela

Born: March 1999

Clinically Diagnosed

East

Shari Blum  
Spokane

Daughter: Elizabeth

Born: February 2013

OREGON

North

Rhonda and Craig Kirtland

St. Helens

(503) 840-9721

Son: Evan

Born: January 2005

South

 

Robin and Mike Marx 

Coburg
(541) 485-8518

Son: Erich

Born: June 1994

Clinically Diagnosed

 

Steve and Noel Zeedyk
Eugene

(541) 302-2803

Daughter: Brielle

Born: 2008

UBE3a Mutation

ALASKA

We currently do not have any contact families from Alaska. If you are from Alaska or know of anyone from Alaska who would like to be a contact family for our organization please contact us.

13036 SE Kent-Kangley Road, #375

Kent, WA 98031

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