PARENT TO PARENT
When a child is first diagnosed with AS, it is natural to be overwhelmed with the news. You are not only interested in acquiring specific information about AS, but also may need emotional support to help you through the difficult feelings that come after the diagnosis. This adjustment period may last a number of years. Various events and family situations throughout the life of your AS child can also create a need for emotional support.
Sometimes it is helpful to discuss your thoughts and feelings with others that have had the same experiences. We have a number of parents within our group, with AS children of varying ages and abilities, who are willing to be contacted by other AS families. If you would like a family in your region to contact you then please fill out the form below. Otherwise, please feel free to reach out to one of the families listed at the bottom of this page.
PNWASF Parent-to-Parent Contact Form
We are always updating our Parent to Parent directory. If you would like to be added please email your name, city in which you live, phone number, e-mail, name of your child/children with AS, their date of birth and classification, if known (for example: deletion positive, clinical, UPD, etc.)
WASHINGTON
North
Jon and Jennifer Hegge
Everett
(425) 750-2985
Daughter: Alyssa
Born: November 1989
Clinically Diagnosed
Jeremiah and Sarah Webb
Mukilteo
(801) 885-1765
Son: Jackson
Born: June 2011
South
David and Erin Platts
Auburn
(253) 737-5974
Daughter: Bridgitte
Born: December 1989
Deletion Positive
West
Gloria DeRosa and Chris Luna
Port Orchard
(360) 876-8342
Daughter: Angela
Born: March 1999
Clinically Diagnosed
East
Shari Blum
Spokane
Daughter: Elizabeth
Born: February 2013
OREGON
North
St. Helens
(503) 840-9721
Son: Evan
Born: January 2005
South
Coburg
(541) 485-8518
Son: Erich
Born: June 1994
Clinically Diagnosed
Steve and Noel Zeedyk
Eugene
(541) 302-2803
Daughter: Brielle
Born: 2008
UBE3a Mutation
ALASKA
We currently do not have any contact families from Alaska. If you are from Alaska or know of anyone from Alaska who would like to be a contact family for our organization please contact us.